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Rare Disease Day - European Symposium
www.livestream.com/eurordis
Rare Disease Day - European Symposium
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 502 rare diseases patient organisations in over 46 countries.
- Nonprofit & Activism
- English
- 69,613viewer mins
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35:03
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Conclusions from Andrew Jack, Financial Times
Conclusions from andrew jack, financial times
Recorded on Feb 29, 2012
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05:41
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M. Chris Sotirellis, UK Thalassemia Society
M. chris sotirellis, uk thalassemia society
Recorded on Feb 29, 2012
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54:41
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Ms. Elizabeth Vroom, Chair, United Parent Project...
Ms. elizabeth vroom, chair, united parent project muscular dystrophy
Recorded on Feb 29, 2012
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18:51
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Dr Kate Bushby, Project Leader, Treat NMD
Dr kate bushby, project leader, treat nmd
Recorded on Feb 29, 2012
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28:42
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Dr Ségolène Aymé, Chair of EUCERD
Dr ségolène aymé, chair of eucerd
Recorded on Feb 29, 2012
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01:16
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Dr Ségolène Aymé, Chair of EUCERD
Dr ségolène aymé, chair of eucerd
Recorded on Feb 29, 2012
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33:43
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Yann le Cam - Rare but Equal
Yann le cam - rare but equal
Recorded on Mar 07, 2011
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16:06
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Yann le Cam - take home message
Yann le cam - take home message
Recorded on Feb 28, 2011
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00:58
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Afternoon Panel Discussion (Caregiver testimony f...
Afternoon panel discussion (caregiver testimony for myeloma) – health inequalities in the field of rare diseases
Recorded on Feb 28, 2011
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05:41
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Panel Discussion (Conclusions) – How can we mit...
Panel discussion (conclusions) – how can we mitigate health inequalities for rare disease patients?
Recorded on Feb 28, 2011
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08:54
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Panel Discussion (Part 3) – How can we mitigate...
Panel discussion (part 3) – how can we mitigate health inequalities for rare disease patients?
Recorded on Feb 28, 2011
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10:27
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Panel Discussion (Part 2) – How can we mitigate...
Panel discussion (part 2) – how can we mitigate health inequalities for rare disease patients?
Recorded on Feb 28, 2011
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17:34
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Panel Discussion – How can we mitigate Health I...
Panel discussion – how can we mitigate health inequalities for rare disease patients?
Recorded on Feb 28, 2011
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24:01
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Inequalities inside the EU: the case of Bulgaria
Inequalities inside the eu: the case of bulgaria
Recorded on Feb 28, 2011
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04:11
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(Part 2) Unequal access to treatment for Multiple...
(part 2) unequal access to treatment for multiple myeloma patients in the uk, gillian thomas
Recorded on Feb 28, 2011
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10:22
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Unequal access to treatment for Multiple Myeloma ...
Unequal access to treatment for multiple myeloma patients in the uk, gillian thomas
Recorded on Feb 28, 2011
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17:50
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Comparative demographics of the European cystic f...
Comparative demographics of the european cystic fibrosis population: across-sectional database analysis, prof. anil mehta
Recorded on Feb 28, 2011
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07:20
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(Part 2) Comparative demographics of the European...
(part 2) comparative demographics of the european cystic fibrosis population: across-sectional database analysis, prof. anil mehta
Recorded on Feb 28, 2011
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10:50
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Morning Panel Discussion (ehealth) – Health Ine...
Morning panel discussion (ehealth) – health inequalities in the field of rare diseases
Recorded on Feb 28, 2011
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00:45
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Morning Panel Discussion (Centers of Reference) â...
Morning panel discussion (centers of reference) – health inequalities in the field of rare diseases
Recorded on Feb 28, 2011
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07:57
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Panel Discussion (Morning, questions from the flo...
Panel discussion (morning, questions from the floor) – health inequalities in the field of rare diseases
Recorded on Feb 28, 2011
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09:47
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Morning Panel Discussion (Part 2) – Health Ineq...
Morning panel discussion (part 2) – health inequalities in the field of rare diseases
Recorded on Feb 28, 2011
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04:00
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Morning Panel Discussion (Part 1) – Health Ineq...
Morning panel discussion (part 1) – health inequalities in the field of rare diseases
Recorded on Feb 28, 2011
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04:03
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Inequality in Romania
Inequality in romania
Recorded on Feb 28, 2011
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10:00
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Unequal access to neonatal screening for PKU pati...
Unequal access to neonatal screening for pku patients in romania, carmen cordea, pku liferomania
Recorded on Feb 28, 2011
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09:04
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EU Disability Strategy, Silvio Grieco (Part 2)
Eu disability strategy, silvio grieco (part 2)
Recorded on Feb 28, 2011
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02:49
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Cross-Border Healthcare Directive, Nathalie Chaze...
Cross-border healthcare directive, nathalie chaze (part 2)
Recorded on Feb 28, 2011
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12:57
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Cross-Border Healthcare Directive, Nathalie Chaze...
Cross-border healthcare directive, nathalie chaze,
Recorded on Feb 28, 2011
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